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  1. #1
    Eruption ChrisTheEdHead's Avatar
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    Default April 2 is Autism Awareness Day

    Whew...made it before midnight
    "Look, I'll pay you for it, what the f**k?!"

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    Baluchitherium Texas Poundcake's Avatar
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    Quote Originally Posted by ChrisTheEdHead View Post
    Whew...made it before midnight
    Glad you posted this Chris. This is something everyone needs to know about. The stats keep growing and no one knows exactly why. It's a very hard thing to cope with. Every child with autism is different. I work with handicapped kids and my nephew has autism. Be sure to tune into CNN as they will be doing alot of coverage on this in the next week.
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  3. #3
    Sinner's Swing! Bullwinkle's Avatar
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    I had an autistic guitar student last year. Actually he had "Something" syndrome, I can't remember the name right now.

    Anyway, I handed him his textbook and said, "We're going to be learning the songs in this book".
    When he came in for his lesson the next week, I asked him, "Did you have a chance to look at the book?"
    "Yes," he said.
    "Great!" I said. "Did you learn the first song?"
    "Yes," and he played it.
    "Wow, that's pretty good. It takes some people a couple of weeks to get through the first song. Did you start on the second one?"
    By this time he's looking at me like I'm being really dense.
    "Yes," he said, and he played it.
    I'm starting to catch on now, "How about the third song?"
    "Yes," and he played it.
    "How many songs did you learn last week?"
    "All of them."
    "All of them?!?" There are about thirty in the book.
    "Yes. You said to learn the songs in this book."

    And damn if he hadn't memorized every note in the book! There were some technique and timing issues, but he'd done every song!
    After that, I was much more careful in giving instructions to him. He stayed with me as a student for about six months and then decided to play oboe in the school orchestra.

    Edit: Asperger's syndrome. Does that sound right?







    Don't read this.

  4. #4
    Eruption Stiil_A_Fan's Avatar
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    Quote Originally Posted by Bullwinkle View Post
    I had an autistic guitar student last year. Actually he had "Something" syndrome, I can't remember the name right now.



    Edit: Asperger's syndrome. Does that sound right?

    Yes that is correct.

    We believe our youngest daughter has it. She was first diagnosed with autism and latter the diagnoses was changed.

    That is an awesome story about your student.

  5. #5
    Eruption
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    My son is almost 6 and while they haven't "officially" diagnosed him with it (they usually don't until they're 6), they believe he has Asberger's. He has an astounding memory and has been translating it to music and numbers really well. I received a lot of help from a Linker who has it and how to deal with it as a parent and it's helped me tremendously. The thing I've learned most is that the range of abilities of every kid with Asberger's and Autism is extreme. Some kids can do very little and some you wouldn't guess anything is wrong whatsoever except for minor social quirks. You really have to play to their strengths in hopes that newfound confidence can translate to other areas of development. Lastly, we've had a lot of success with a Gluten-free diet for my son.

  6. #6
    Atomic Punk Menlow's Avatar
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    My five year old son is autistic. It's great that there has been so much done over the last few years to raise awareness of the issue. It's really frightening how so many children are becoming affected and there doesn't seem to be an end in sight.

  7. #7
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    11.03.17 @ 01:35 PM
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    My 10 year old has what his doctor calls an Autism Spectrum Disorder (ASD) that was not properly diagnosed until roughly 3 years ago. What is truly shameful is how the 'regular' medical community treats these children, bouncing them from one specialist to another hoping to pin it on something else. We found that vitamin therapy and a slight change to his diet have worked wonders. He went from a marginal student ot being an A/B student, with excellent marks in anything math related. Oh, and give him an evening with a map, and he'll tell you where things are!

    I hope all of you are having at least some progress with your child's problems, as I know that it can be truly discouraging at times with the medical establishment.
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  8. #8
    Sinner's Swing! Bullwinkle's Avatar
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    Quote Originally Posted by Stiil_A_Fan View Post
    Yes that is correct.

    We believe our youngest daughter has it. She was first diagnosed with autism and latter the diagnoses was changed.

    That is an awesome story about your student.

    I saw him in the store last week. He's still playing.
    I have no training in special education, so I was really making it up as I went along.

    The thing I noticed in teaching him was that he learned things by one method only. With most students, you tell them how to do it, you read along with them in the textbook, you show them how it's done, and you have them listen to the pre-recorded, finished song. They will pick up a little information here, and a little there, and put all of the pieces together.

    With this guy, it was the written instructions in the textbook and nothing else. We'd read the instructions together and then he'd play it. We'd read them again, and he'd play it again, and that's how it worked.
    If I tried to interpret the instructions for him ("Another way to look at it is like this..."), he'd listen politely and then turn back to the book.
    I gradually realized that I was confusing him by re-phrasing what was written in the book. The book says this, not the different words I just said, the book says this. Right here in black and white.
    And that's how we ended up doing it. read the book, play the song, read the book, play the song. Very few other words were even spoken in the lesson.

    Oh, one more thing. I made the mistake of touching him one time. Sometimes when you're teaching a student, you have to grab their hand and put their fingers in the right place on the guitar. He was making a mistake and, without thinking, I reached over and grabbed his hand. He didn't flip out or anything, but I had the embarrassing impression that I'd just done something waaaaay too intensely personal. It was as though I'd kissed him on the lips or something.
    Later on, when we knew each other better, a similar situation came up. I stopped myself and asked, "Is it okay if I grab your finger? I need to fix something." He thought about it for a minute and said, "Yeah, it's okay." I felt good about that, like I'd been tested and found acceptable.







    Don't read this.

  9. #9
    Atomic Punk TheresOnlyOneWay's Avatar
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    Jenny McCarthy: My son's recovery from autism

    We believe what helped Evan recover was starting a gluten-free, casein-free diet, vitamin supplementation, detox of metals, and anti-fungals for yeast overgrowth that plagued his intestines. Once Evan's neurological function was recovered through these medical treatments, speech therapy and applied behavior analysis helped him quickly learn the skills he could not learn while he was frozen in autism. After we implemented these therapies for one year, the state re-evaluated Evan for further services. They spent five minutes with Evan and said, "What happened? We've never seen a recovery like this."

    Evan is now 5 years old and what might surprise a lot of you is that we've never been contacted by a single member of the CDC, the American Academy of Pediatrics, or any other health authority to evaluate and understand how Evan recovered from autism. When Evan meets doctors and neurologists, to this day they tell us he was misdiagnosed -- that he never had autism to begin with. It's as if they are wired to believe that children can't recover from autism.

    http://www.cnn.com/2008/US/04/02/mcc...ent/index.html
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  10. #10
    Eruption ChrisTheEdHead's Avatar
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    Quote Originally Posted by TheresOnlyOneWay View Post
    Jenny McCarthy: My son's recovery from autism

    We believe what helped Evan recover was starting a gluten-free, casein-free diet, vitamin supplementation, detox of metals, and anti-fungals for yeast overgrowth that plagued his intestines. Once Evan's neurological function was recovered through these medical treatments, speech therapy and applied behavior analysis helped him quickly learn the skills he could not learn while he was frozen in autism. After we implemented these therapies for one year, the state re-evaluated Evan for further services. They spent five minutes with Evan and said, "What happened? We've never seen a recovery like this."

    Evan is now 5 years old and what might surprise a lot of you is that we've never been contacted by a single member of the CDC, the American Academy of Pediatrics, or any other health authority to evaluate and understand how Evan recovered from autism. When Evan meets doctors and neurologists, to this day they tell us he was misdiagnosed -- that he never had autism to begin with. It's as if they are wired to believe that children can't recover from autism.

    http://www.cnn.com/2008/US/04/02/mcc...ent/index.html
    One of the few bright spots of dealing with my son's condition was I got a hug and kiss from Jenny McCarthy last year. If only I couldve gotten more...
    "Look, I'll pay you for it, what the f**k?!"

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  11. #11
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    Anyone catch Larry King last night? i normally don't watch but I knew he had a "panel" on autism.

    Incredible how little we know on this subject medically. I had to stop watching because it was so frustrating and Jenny McCartney was (IMO) being talked down to and ignored, like she has no clue what she speaks of... she is the mother of one of these children and her husband pretty much left her because he couldn't deal with Evan and their life as it was....the Dr that was "on her side" was getting pushed out as well. I get so annoyed when main stream doctors will not listen to parents, get angry when they ask why and send them to yet another "specialist" when they don't want to dig deeper and try to help.

    I have the utmost respect for those of you parenting autistic children, you're amazing.
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  12. #12
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    Quote Originally Posted by EVHgirl in Va View Post
    Anyone catch Larry King last night? i normally don't watch but I knew he had a "panel" on autism.

    Incredible how little we know on this subject medically. I had to stop watching because it was so frustrating and Jenny McCartney was (IMO) being talked down to and ignored, like she has no clue what she speaks of... she is the mother of one of these children and her husband pretty much left her because he couldn't deal with Evan and their life as it was....the Dr that was "on her side" was getting pushed out as well. I get so annoyed when main stream doctors will not listen to parents, get angry when they ask why and send them to yet another "specialist" when they don't want to dig deeper and try to help.

    I have the utmost respect for those of you parenting autistic children, you're amazing.
    I missed the Larry King deal, its too bad about McCarthy though. She comes across as genuine and not at all pushy about what she has learned/done.

    One the other hand, I can see how the medical establishment gets upset by some of the more non-conventional treatments. The first doctor we found that headed us in the right direction was a fanatic to the point of being almost scary. We took a lot of the information and worked on our own from there, which got us where we are today. If some of these people would lighten up a tad, they would really reach out to more people and shed new light on the subject.
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  13. #13
    Atomic Punk onefootoutthedoor's Avatar
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    Quote Originally Posted by Bullwinkle View Post
    I had an autistic guitar student last year. Actually he had "Something" syndrome, I can't remember the name right now.

    Anyway, I handed him his textbook and said, "We're going to be learning the songs in this book".
    When he came in for his lesson the next week, I asked him, "Did you have a chance to look at the book?"
    "Yes," he said.
    "Great!" I said. "Did you learn the first song?"
    "Yes," and he played it.
    "Wow, that's pretty good. It takes some people a couple of weeks to get through the first song. Did you start on the second one?"
    By this time he's looking at me like I'm being really dense.
    "Yes," he said, and he played it.
    I'm starting to catch on now, "How about the third song?"
    "Yes," and he played it.
    "How many songs did you learn last week?"
    "All of them."
    "All of them?!?" There are about thirty in the book.
    "Yes. You said to learn the songs in this book."

    And damn if he hadn't memorized every note in the book! There were some technique and timing issues, but he'd done every song!
    After that, I was much more careful in giving instructions to him. He stayed with me as a student for about six months and then decided to play oboe in the school orchestra.

    Edit: Asperger's syndrome. Does that sound right?


    My brother in-law has Asperger's Syndrome. He is a costume and makeup designer for TV commercials and movies. He is incredibly gifted.
    [SIGPIC][/SIGPIC]

  14. #14
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    Quote Originally Posted by VanHalenRules View Post
    I missed the Larry King deal, its too bad about McCarthy though. She comes across as genuine and not at all pushy about what she has learned/done.

    One the other hand, I can see how the medical establishment gets upset by some of the more non-conventional treatments. The first doctor we found that headed us in the right direction was a fanatic to the point of being almost scary. We took a lot of the information and worked on our own from there, which got us where we are today. If some of these people would lighten up a tad, they would really reach out to more people and shed new light on the subject.
    I think you are right. I guess there is such a wide "spectrum" *seemed like a good word here* of degrees for autism , there is no one right way to do things.... everyone here seems methodical, take one step at a time, use the information, ect... many people are not that way, they just want it fixed and want to , not necessarily blame someone or thing, but want to know exactly why. Rightfully so, they are really angry but seem to get pushed aside but the medical community because they just don't have a good answer for them.

    My husband has a limited patient base because of his research responsibilities and he has only a few autistic children. There are many ways parents successfully treat their kids. Diet, supplements, environment, ect...trial and error, each kid seems to respond differently and to a different level. He gets so frustrated trying to help them, there's just so little good evidence based material. So, when you start down an experimental road you have no studies to back up what you are practicing and unfortunately, leave yourself open to legal issues....frustrating all around...
    Model Citizen, Zero Discipline


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  15. #15
    Eruption ChrisTheEdHead's Avatar
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    Quote Originally Posted by VanHalenRules View Post
    I missed the Larry King deal, its too bad about McCarthy though. She comes across as genuine and not at all pushy about what she has learned/done.

    One the other hand, I can see how the medical establishment gets upset by some of the more non-conventional treatments. The first doctor we found that headed us in the right direction was a fanatic to the point of being almost scary. We took a lot of the information and worked on our own from there, which got us where we are today. If some of these people would lighten up a tad, they would really reach out to more people and shed new light on the subject.
    The problem is, as I see it, the medical/pharmaceutical establishment tries to marginalize ANYTHING that seems to work, if its not a pill or injection....and all this stuff DOES work to some degree, in some cases. But if it DOES work for someone, the dr's pooh-pooh it or say they were misdiagnosed, whatever. ANYTHING to keep from admitting there might be something to it. So, the parents get defensive and worked-up, which DOES hurt their credibility. Its sort of the same thing you see with "alternative" treatments, like acupuncture: "It didnt come down from our high and mighty medical white towers, therefore it is not valid".
    I know the gluten-free diet has worked wonders for some kids. Ive seen it myself. Dont try to tell me its all a coincidence.
    But on the other hand, I also think vaccines did NOT cause these kids to suddenly "sprout" autism. The disorder was already there, it just got triggered by an external stimulus. Almost like an allergy, in many ways. You never knew you were allergic to beestings until you got stung. Could it be a chemical reaction to something in the vaccine? Could be. Does that mean that all vaccines are bad and should be banned? No. But then again, do I have complete faith in a report or study about the vaccines/autism link, one that was funded by the pharmaceutical companies who manufacture vaccines? HELL no.
    Anyone remember Thalidomide? Was supposed to be a WONDERFUL fertility drug....couldnt NOT get pregnant taking that. Of course, a few years later, babies were being born with tails and 2 heads...oops.
    Anyway, enough rambling.
    A question for all the parents, caregivers, etc of children with Autism Spectrum Disorder(s): What is your single biggest challenge raising your child?
    Mine isnt so much with him, as with everyone else. Sometimes I almost wish ASD had some kind of physicial characteristic so people could SEE the disorder, instead of feeling they have to come up to me, a complete stranger, and tell me how my child "shouldnt be doing that"...or the ones who like to whisper and point when they think youre not looking or cant hear. Ive gone off on people several times, when I just couldnt take it anymore. Im not proud of that, but then, if the ignorant bastards would just worry about their kids and leave mine alone, it wouldnt have happened!
    And its very heartwarming to see all the discussion here. It certainly is more thought-provoking than "WVH is fat"
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