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  1. #1
    Atomic Punk BREW CREW's Avatar
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    08.27.17 @ 09:39 AM
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    Default Help! What do you know about Lupis?

    It's hit home my friends. I need to know any info regarding the disease called Lupis. Any information will be helpful. I know there is no cure, but there is help. Please help me figure this out.
    Just go for it!

  2. #2
    Atomic Punk smithjc's Avatar
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    08.04.17 @ 11:33 PM
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    Are you talking about Lupus???????

    That's not good. I don't know very much about it but I do know it's an autoimmune disease and they are working on drugs to treat it. I did some reading on it but it was a few months ago. I'd have to break out the ol' doc book.

    Where's Sunya???? She might know more than I do. Sorry not much help but I'm gonna look in the book tonite.
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  3. #3
    Imperial Fascist Overlord Down In Flames's Avatar
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    Default

    I'm sorry to hear that, Brew.

    Here are a few sites dedicated to Lupus.

    http://www.lupus.org/
    http://www.lupusresearch.org/faqs_lupus.html

    http://www.lupusmd.org/subindex.jsp?nav_id=3
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  4. #4
    Atomic Punk smithjc's Avatar
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    08.04.17 @ 11:33 PM
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    Thanks DIF.

    It's not a fun subject but at least the info is there. Knowledge is power.
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  5. #5
    Atomic Punk BREW CREW's Avatar
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    08.27.17 @ 09:39 AM
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    Quote Originally Posted by Down In Flames
    I'm sorry to hear that, Brew.

    Here are a few sites dedicated to Lupus.

    http://www.lupus.org/
    http://www.lupusresearch.org/faqs_lupus.html

    http://www.lupusmd.org/subindex.jsp?nav_id=3
    Thanks DIF and smithjc!

    I will check out the links and I will keep reading everyones input.
    Just go for it!

  6. #6
    Atomic Punk smithjc's Avatar
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    08.04.17 @ 11:33 PM
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    You're definitely not alone BC.
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  7. #7
    Eruption lal5150's Avatar
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    06.16.12 @ 03:16 PM
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    my buddy's wife has lupus and it has done many a nasty thing to her. she cant go out in direct sunlight . i know she gets sick very easily . and recently has spent time in the hospital.

  8. #8
    Atomic Punk ZeoBandit's Avatar
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    12.13.17 @ 06:12 AM
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    That sounds like a nasty disease. Best of luck to you, Brew
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  9. #9
    Atomic Punk jimmy812's Avatar
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    06.03.17 @ 06:59 PM
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    Default

    Brew, I'm sorry to hear about this.
    A friend of mine had lupus. Things didn't turn out so well for her. She had it for like 15 years before she succumbed.
    I believe there are 3 or 4 types of lupus. "Systemic Lupus," I believe, is the worst kind. However the other types may eventually become systemic. I believe it's a disease of the skin, but when it becomes systemic, it attacks the organs of the body.
    I don't want to paint such a negative picture. I just know that the experience that my friend went through wasn't good.
    There are treatments to help subside the 'flare-ups' which are the rashes associated with the more basic form of the disease.

    Once again, Brew, I'm sorry. And I hate to sound so bleak but that's what I know about lupus.

  10. #10
    Sinner's Swing! racefan8's Avatar
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    04.01.11 @ 07:59 PM
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    Brew, I'm so sorry to hear this. It is really not good. My mother-in-law had this for I believe 12 yrs before she passed. She was 54. I think there was some confusion as to if she had Lupus or Scleroderma (sp?). I think there were some experimental drugs coming out that had good results. Look into this as thoroughly as you can. My thoughts and prayers are with you, Brew.
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  11. #11
    Atomic Punk Van Squalen's Avatar
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    12.13.17 @ 11:19 PM
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    It does depend on the type and degree of lupus. Some can live their whole lives normally with treatment. Some succumb sooner to autoimmune infections. It all depends.

    Thoughts are with ya, man.

  12. #12
    Baluchitherium KT's Avatar
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    08.08.17 @ 07:44 PM
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    Brew...I'm sorry to hear about this. Are you the one that's been diagnosed with Lupus?
    Meet me in Cabo!

  13. #13
    Atomic Punk BREW CREW's Avatar
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    08.27.17 @ 09:39 AM
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    Quote Originally Posted by ktgiles
    Brew...I'm sorry to hear about this. Are you the one that's been diagnosed with Lupus?
    My wife was diagnosed yesterday.
    Just go for it!

  14. #14
    Atomic Punk smithjc's Avatar
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    08.04.17 @ 11:33 PM
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    The diagnosis part is not fun believe me, but at least it does put a name to the symptoms so now you can start dealing with it and managing it as best as you can.

    Good luck, we're all here for you.
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  15. #15
    carpe damn diem billy007's Avatar
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    12.13.17 @ 07:40 PM
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    Quote Originally Posted by BREW CREW
    My wife was diagnosed yesterday.
    Well, that definitely sucks, hopefully the medical folks can do good things for her.

 

 

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